Monday, February 15, 2010

Interstitial Cystitis And Sponge Kidney What Exactly Is Medullary Sponge Kidney & Interstitial Cystitis?

What exactly is Medullary Sponge Kidney & Interstitial Cystitis? - interstitial cystitis and sponge kidney

I had urinary problems in my life, whether urinary tract infection or kidney stones. Recently I was diagnosed with the disease, Medullary kidney (MSK) and interstitial cystitis (IC). I know little or nothing about these 2 problems, I have constant pain and the doctor told me that I live in chronic pain for the rest of my life. So if someone out there knows something about MSK, or ICR, please let me know. It must be someone, somewhere knows something. Please help ......

2 comments:

wldhorse... said...

Unfortunately, I do not know much about him, but last week I was even diagnosed (MSK and JI are the same thing just different names for what my doctor told me). For months, I received stitches badly, there were 4 kidney stones, blood in urine, which appeared to be gravel.

SCARD I, too, but here are some things I've learned. Yes, we are in pain, then my doc Vicodan at home (I'm allergic) to morphine. She said that the effect increased to 64 ml of gallons of water per day (2 liters), and a little lemon. Cranberry pills are. Every two months in the 3 days before my time I have to take to another, alternating with antibiotics for an infection. Basically, if I understand correctly, our kidneys deepCracks in them like a sponge and can not empty completely, causing irritation, accumulation of minerals, stones and the pain. The good news? It will kill us. It is customary to "cause renal failure, we will never need a transplant or dialysis (or how to spell that) because of it.

The pain is bad, I know, trust me. It brings tears to my eyes. I am a professional chef, and that influenced my work very much. I have) a good nephrologist (kidney specialist if you live in New Jersey, and if not, I suggest that you get, because they know the disease and can help you live with it. They can help you help your pain in the hand and the lives of his life without major problems. He has even said that it was possible with their help to me one dayWas presented on the subject, and she was afraid of death, he called me and told me to look for the specialist, but the dr. called me in the middle of renal disease in southern New Jersey, where I live has been a godsend. He spent an hour talking to me about this issue and develop a plan to see how bad check, and my pain, so you can have a normal life.

If you are with someone else, you can talk to me an e-mail. I'm in the same boat as you and I said, I was diagnosed last week (8-23), but says many of the questions I had for a long time. I mean, I'm an active 25 years and cuts into my life. I'm sorry that you hurt so bad, but I understand how it hurts.

shelly12... said...

I had IC for 4 years. I found that I and many others with IC-proof positive for Lyme Bartonella co .... Dale is a PN is that we are here .. with antibiotic treatment It helps. For more information you can to the group I started on Yahoo .. antibiotictreatmentforic@yahoogroups.com their visit ...
There are about 20 of us in the group and all patients were ... My symptoms improved and we found a cause that our pain! the tender has said the same thing for him! Until we found this NP.

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